This is my primary school bestie Janna Linke founder of health advocacy brand Zebra Blends. Janna touched base to say how helpful her medi practice has been especially being high risk during the current circumstances. In the medical world, patients with rare diseases are referred to as zebras. Whilst Janna has had symptoms of Ehlers Danlos syndrome (EDS), a connective tissues disorder her entire life, she was diagnosed at 33 – not one doctor had previously connected the dots on her seemingly unrelated list of symptoms and conditions.
She has many of the commonly associated comorbid conditions that come along with EDS: Gastroparesis, dysautonomia, mast cell activation syndrome (MCAS), chronic fatigue syndrome (ME/CSF) and spontaneous cerebrospinal fluid leaks. Having developed instability in her upper cervical spine she’s also currently dealing with and managing compression of her brainstem.
Here’s what she had to share with her followers recently… “At the risk of jinxing myself I am finding through medication and MEDITATING (balancing out the nervous system can help dampen down over active mast cells), I am reducing (far from eliminating) my brain fog. Brain fog is by far my most hated symptom. It’s the pits feeling like you have dementia at 35. But controlling and managing it is the next best thing I have to fixing it. There is no fix. No magic bullet. It’s just about working with it and finding things that help.
I do Vedic meditation and thoroughly recommend it. I learnt with a teacher who is now overseas, but have since done extra learning to deepen my meditation practice with a dear old school friend Kate Cliff, a Vedic meditation teacher, and a great one at that. With the guidance of my friend, I added a breathing technique called pranayama to my practice. This has become my favourite part of my meditation. It is great for increasing parasympathetic nervous system tone and reducing our sympathetic nervous system tone, which is our fight or flight response. This isn’t a fix (for me) it’s another tool I have in my tool box to manage my complex bagful of conditions and syndromes. An easy, easy yet very effective style of meditation.”